When I had a stroke in May 2017 that left my entire left side paralyzed, I was forced to reinvent myself. As someone who now suddenly dealt with mobility challenges, the resulting foot drop from my stroke did more than just change my gait—it impacted my independence, and more specifically, my ability to travel. The world suddenly felt smaller to me, and much less accessible. Airports, once my portal to great adventure, became confusing and tiring labyrinths I dreaded visiting. In an airport, there were simply too many factors outside of my control. Long security lines, unpredictable distances between the security line and my gate, cramped bathroom stalls without grab bars, lack of elevators close by - all of these unknowns that I never used to consider were now hugely limiting factors to my ability to travel.
But now to help with my foot drop I use the Cionic Neural Sleeve, a wearable technology device that has revolutionized how I navigate the world—and particularly the complex ecosystem of air travel. For stroke survivors with foot drop, flying presents unique challenges that this innovative technology has helped me overcome. Many have asked, so here's my comprehensive guide to air travel with the Cionic Neural Sleeve - from pre-flight preparations to reaching your final destination safely and with confidence.
Planning, Planning, Planning
One of the most significant adjustments after my stroke has been accepting that travel now requires substantially more thought and planning than it used to. What was once spontaneous now demands careful consideration and preparation. I've learned to embrace this reality and find a version of travel that works for me.
The days of last-minute bookings and carefree exploration have been replaced with detailed itineraries, accessibility research, and contingency plans. While this might seem overwhelming, I've found that this extra planning actually improves my travel experience by eliminating many unpredictable variables that could otherwise derail my trip.
Before the Neural Sleeve, this planning process was such a heavy burden it oftentimes ended up dissuading me from ever even embarking on the journey. Now, while the planning piece is still necessary, the Sleeve has expanded my capabilities and confidence, making the preparation feel worthwhile rather than restrictive.
Pre-Flight Planning: Setting Yourself Up for Success
Documentation and Medical Clearance
If you are new to air travel post-injury, before booking your flight, consult your doctor or physical therapist about your travel plans. It can be helpful to keep a brief medical letter explaining your condition and the Neural Sleeve's function. This has proven invaluable for customers during security screenings, preventing delays or confusion about the device’s function. The Cionic Neural Sleeve pamphlet can be shown to a TSA agent and provides information about the Sleeve. Be prepared and download it here to bring on your next trip to the airport.
Choosing the Right Flights
In the eight years since my stroke, I've learned to be strategic about flight selection:
- Direct flights (when possible) eliminate the stress of making connections under time pressure
- Longer layovers (90+ minutes) when connections are unavoidable give me adequate transition time
- Morning flights, when I have more energy and airports may be less crowded
- Selecting airports known for better accessibility features (many airport websites now detail their accessibility options)
Seat Selection Matters
The extra cost for seat selection is worth every penny:
- Aisle seats provide easier bathroom access and eliminate the need to climb over fellow passengers
- Seats that offer additional legroom to adjust the Neural Sleeve if needed
- Right-side aisle seats work best for me since my left side was affected. This also increases my likelihood of spotting the flight attendant.
I remember last year I was on a flight from Brussels back to the US, and since I was seated on the far column of the plane, the flight attendant passed by me on the left side. When it was dinnertime, I didn’t notice the flight attendant standing in front of me with the food options until he raised his voice, obviously confused why I was ignoring him, to ask, “Ma’am? “Hello, ma’am, would you like curry chicken or vegetarian pasta?”
Packing Considerations
The Cionic Neural Sleeve requires some specific packing strategies:
- I always pack the charger in my carry-on, never in checked luggage, in case I need it easily accessible
- If I need to check a bag with the Neural Sleeve in it, I always keep the control unit in my carry-on luggage due to airline lithium battery restrictions
- A backup battery pack ensures I never run out of power
- I pack extra gel pads in case mine get dried out on my trip
- The Sleeve's control unit fits easily in a backpack, purse, or bag
- I sometimes bring cleaning wipes for the electrodes if traveling for multiple days
- My traditional AFO (ankle-foot orthosis) or other FES brace comes as a backup, just in case
Airport Navigation: The Day of Travel
Getting to the Gate
Airports require significant walking, often at a brisk pace. The Neural Sleeve has transformed this experience for me, but I still sometimes use these strategies:
- I book my transportation to arrive at least 30 minutes earlier than recommended for my flight
- I use the airline’s app to familiarize myself with terminal layouts beforehand
- If needed, I call ahead to request a wheelchair for particularly large airports or tight connections, using the Neural Sleeve for shorter distances where I can manage independently
- I take advantage of pre-boarding options to avoid the rush and stress of general boarding
Security Screening Success
TSA interactions require preparation:
- I've enrolled in TSA PreCheck, which has been absolutely transformative for my airport experience
- With PreCheck, I don't need to remove my shoes or take off the Neural Sleeve, eliminating one of the most stressful and physically challenging aspects of air travel.
- The expedited screening process means significantly less standing time, so I’m less fatigued before my flight.
- Even with PreCheck, I still inform agents about the Neural Sleeve before screening begins, saying that it helps me to walk and I can’t remove it for security. This has never been a problem for me; the TSA agents are generally understanding and sometimes just want to take a quick look and conduct a screening or patdown.
- The Sleeve typically doesn't trigger metal detectors, but I'm prepared for the additional screening just in case, which is why I allow extra time to arrive at the airport.
- For international travel where PreCheck isn't available, I request a pat-down and advise the security agents I cannot remove the device but they are welcome to investigate.
Comfort During the Flight
Once on board, managing comfort with foot drop and the Neural Sleeve requires some adaptation:
- I adjust the stimulation settings to "Pause" through the app, or I will turn it off which prevents unnecessary muscle activation while seated.
- I perform seated ankle and arm stretching exercises to prevent stiffness.
- Compression socks help prevent swelling at altitude.
- I remove the controller from my pocket during long flights for comfort. If needed, I will charge the control unit from the plane so I am prepared with a full charge for landing.
- I periodically check electrode contact to ensure effectiveness upon arrival.
Arriving at Your Destination: Prepping for Adventure
The Final Stretch
After landing, fatigue often sets in, making the Neural Sleeve particularly valuable:
- I recalibrate the sleeve settings to "Walking Mode" before disembarking.
- When deplaning, I wait for crowds to thin before attempting to retrieve luggage from overhead bins.
- I move to the side after exiting the plane to adjust my belongings and prepare for the terminal journey. If wheelchair assistance was previously requested, wait for the appropriate airport staff member to assist.
- In the hallways, I use moving walkways when available, as they help conserve energy.
- If connecting to ground transportation, I allow extra time rather than rushing. I move slowly with intention for safety.
Managing New Environments
Each destination presents new terrain challenges:
- I will use the Sleeve's adaptable settings for different surfaces (carpet, tile, concrete). I typically use Gait Context but sometimes will switch to Step-To mode for uneven surfaces.
- I temporarily increase stimulation for inclines like jetways or other uneven surfaces.
- I identify rest points throughout the terminal for brief recovery stops.
- I'm not shy about using airport assistance services when needed.
The Psychological Impact: Freedom Restored
Perhaps the most significant benefit of traveling with the Cionic Neural Sleeve isn't physical but psychological. Pre-sleeve, the anxiety of navigating airports often overshadowed the excitement of travel. Would I fall? Would I hold up my travel companions? Would I be too exhausted upon arrival to enjoy my destination?
The Sleeve has dramatically reduced these concerns. I've regained confidence in my ability to traverse busy terminals, make connections, and arrive at my destination with enough energy to begin enjoying my trip immediately upon arrival. This restored independence has reignited my passion for exploration that my stroke had temporarily taken from me.
Rocking my Neural Sleeve in Cartagena, Colombia, last November
Essential Resources for Travelers with Disabilities
Affordable Airport Transportation
In New York City, where I live, Access-A-Ride has been a game-changer. This paratransit service allows eligible individuals with disabilities to book accessible transportation anywhere in the city for just $2.90 – the same price as a subway ride. I schedule my pickup 1-2 days in advance, and the service provides door-to-curb transportation in accessible vehicles. Similar paratransit services exist in many major cities, often at reduced rates compared to taxis or rideshares.
The Hidden Disabilities Sunflower Program
One of my most valuable travel discoveries has been the Sunflower Lanyard program. This simple green lanyard with sunflower pattern, worn around the neck, discreetly indicates to airport staff that you have a hidden disability and might need additional assistance or consideration. I've found that wearing this lanyard while navigating security, boarding, and other airport procedures results in staff offering help before I need to ask. In fact, last October I was traveling back from Chicago to NYC and my battery ran out on my Neural Sleeve (I hadn't been able to finish charging before checkout). As I’m hobbling up to the ticket counter to check my bag, the man behind the counter saw my Sunflower and immediately asked if he could call for a wheelchair assistance to take me through security. It was a blessing and the assistance saved me from fatiguing more and having to navigate the airport without a brace. Many international airports now recognize this symbol, including most major US airports. You can request one for free at information desks or order online before your trip.
Me with my Disabilities Sunflower getting assistance to my gate at Chicago O'Hare.
TSA PreCheck: A Must-Have for Mobility Devices
If there's one investment that has made the biggest difference in my air travel experience, it's TSA PreCheck. The $85 fee (good for five years) has paid for itself many times over in reduced stress and physical strain. For those of us using mobility devices like the Neural Sleeve, the ability to keep shoes and devices on during screening is invaluable.
What many don't realize is that removing and replacing an AFO or Neural Sleeve isn't just inconvenient—it's physically taxing, time-consuming, and sometimes requires sitting down in an area where seating may not be readily available. With PreCheck, I bypass this entire ordeal. The shorter lines also mean less standing time, which preserves energy for the rest of my journey.
Additional Helpful Resources
- TSA Cares: A helpline (1-855-787-2227) that provides assistance to travelers with disabilities. Contact them 72 hours before travel for personalized support.
- Airline Accessibility Teams: Most major airlines have dedicated teams to assist passengers with disabilities. Contact them directly when booking to arrange specific accommodations.
- Airport Accessibility Maps: Apps like AccessAble and Wheelmap provide detailed accessibility information for many airports.
- Portable Chargers: Essential for keeping the Neural Sleeve powered during long travel days (I recommend carrying at least 10,000mAh capacity).
- Travel Insurance: Look specifically for policies that cover pre-existing conditions and assistive technology.
Limitations and Looking Forward
While the Neural Sleeve has transformed my air travel experience, it's not without limitations. Battery life requires monitoring on particularly long travel days. Occasionally, I need to duck into a family restroom to adjust electrode placement. However, these minor inconveniences pale in comparison to the freedom regained. With each successful trip, my confidence grows. The world is opening back up, one flight at a time.
For stroke survivors with foot drop considering this technology, I encourage speaking with your healthcare providers about whether it might be appropriate for you. The ability to navigate airports—those microcosms of human mobility challenges—has been invaluable to rebuilding my identity as a traveler.
The journey of stroke recovery is measured in steps forward—and thanks to this remarkable technology, mine are becoming steadier, more confident, and taking me to destinations I once thought might be permanently beyond my reach. I’ve brought my Neural Sleeve from LA to NYC, Medellín and Cartagena, Spain - heck, even Indonesia, Thailand, and Vietnam.
To find out if you are eligible for the Neural Sleeve please take the quick online assessment: cionic.com/assessment.
Onward!
Maddi
Traveling in Vietnam with my cousin, Morgan, in my Neural Sleeve
